Lupus: Support and Survival
This page is dedicated to a wonderful group of people..
They are a collection of souls who have no other wiles other than to help one another as friends. They are a Lupus Support Group with the Loving Hearts of Sisters and Brothers, the Courage of the Wolf, and the Strength of the Pack.May the Spirit of the Wolf keep you safe from harm,
May Peace reign in your life throughout the coming year,
May Joy surround you and keep you happy,
May Happiness keep your heart light and free,
May Love fulfill your life and make your spirit fly.Love and light to you all,
Rion In the Spring of 2000, I was diagnosed with fibromyalgia and lupus after having complained of constant pain for several years. I had been told the pain was sore muscles, or the pain was the after-effects from several surgeries, and I was referred by two doctors to talk to a psychiatrist about the problem. So I did.
I was told by my psychiatrist one of the doctors had written him a letter suggesting I may be an addict looking for pain medications. I realize some people may try that route to obtain drugs, but for a medical doctor to assume I was an addict without properly testing and ruling out any underlying disorders is not only unethical, but criminal as well.
I felt compelled to include the following information on my web site. I hope it helps someone to understand the difficulties of dealing with lupus. Lupus is hard to diagnose and is different with each person; but if you hurt all over and have absolutely no energy, consult a doctor, preferably a rheumatologist as they deal with this type of illness and are better able to diagnose the symptoms. Blood tests can verify that you have lupus.
Allow no one to tell you .. "It's all in your head". Find a doctor who will listen to you and persevere until the symptoms are under control.
~ Rion ~
The Full Story
How I Explain Lupus to my Friends .. with Post-It Notes
Contents Definition of Lupus Common Misconceptions Concerns for the Newly Diagnosed Caring for Yourself and Reducing the Stress
Coping with Lupus
Dealing with Doctors:
I Am NOT Fine!
Lupus and Depression
Lupus and Emotions
Lupus and Guilt
Common Secondary Conditions in Lupus:Fibromyalgia Syndrome; Sjogren's Syndrome;
Menstrual Problems & Menopause;
Conditions of the Eye;
Central Nervous System Vasculitis
and All Its Parts
Lupus and Hemolytic Anemia Lupus or Hypothyroidism Lupus Medications
Lupus Nephritis Lupus and Pain Management
Chart Your Pain
Lupus: Pregnancy, Babies, and Neonatal Lupus Lupus, the Sun
and UV rays
Plasmapheresis Pulmonary (Lung) Involvement Vitamins and Nutritional Management of Lupus Drug Interactions:
If I Mix This Drug
with That Drug
How Do I Get Social Security Disability? Lupus
A Letter to be Shared with Friends and Family Can Be Found Here!
"Friends are quiet angels who lift us to our feet
when our wings have forgotten how to fly!"
Thank you Sarah for the angel.Searching for ways to deal with the depression, the frustrations, the questions about lupus, I joined a support group online. LUPIES has been a wonderful gift. I have learned more from the information I found on the support web site and from other sufferers of Lupus than I did from my first doctor. The Lupies and I have become great friends and offer each other support and love.
Thank you fellow Lupies!
With a very special thank you to Deanna ..
a great provider of information and owner of the Lupies online group!
May your days be pain free!
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"Lupie Wolf and Butterfly" logo at the top of the page is
courtesy of © 2003 MJ Haller
Lupus Wolf background by Rion
All literary works and original artwork by Rion on this page,
unless otherwise noted, are the sole property of Brenda Sewell.
I do not mind sharing but please ask me first.
© 1998 - 2004 Brenda "Rion" Sewell
Email me at brendarion at cfl.rr.com
All links and information contained on this site are for information purposes only.
All rights reserved. This is a non-commercial site.This site is intended for educational purposes only, to provide an overview of Lupus for patients, their families, and health care providers. It is not intended to recommend any specific treatment, nor should it be used as a guide for self-treatment.
Patients with Lupus should consult their Rheumotologist before making any changes to their treatment regimen. Changing your treatment regimen could be harmful.
No information on this site should be construed as medical advice.
Get into the Loop!
Spread the news, help to spread the word about Lupus
Visit the other pages on my site by going to my home page:
http://www.itzarion.comContact the Lupus Foundation of America or the local Chapter that serves your area for more information about lupus, or the programs and services the LFA offers including support group information and physician referral.
Lupus Foundation of America., Inc.
1300 Piccard Drive, Suite 200
Rockville, MD 20850-4303
Information gathered from :
Many thanks for the "Surviving Lupus Ribbon" goes to:
For more information on various health related topics, visit: